Treatment for Myelofibrosis    

FOI REFERENCE: 24524  FOI DATE: 15^th November 2024     

Q1. Please provide the total number of patients treated in the last 6 months for?

• Polycythaemia Vera (ICD10 code D45)   83
• Myelofibrosis (ICD10 code D47.4) 18
• Myelofibrosis (ICD10 code D47.4) patients aged 65 and older 16

Q2. How many patients were treated in the past 6 months (for any disease) with: Pharmacy

• Ruxolitinib 24
• Fedratinib 1
• Momelotinib 2

Q3. How many patients were treated with Ruxolitinib in the past 6 months for the following diseases?  

• Myelofibrosis (ICD10 code D47.4) 21
• Polycythaemia Vera (ICD10 code D45) 3
• Other/Unknown 0

Q4. How many myelofibrosis (ICD10 code D47.4) patients has your trust diagnosed in the past 3 years? Information / Pharmacy (not sure if this is Outpatients so the coding may not be useful) 45 recorded as inpatients

• Of these patients, how many were treated in the past 6 months with Hydroxycarbamide?  Unable to provide response  
• Of these patients, how many were treated in the past 6 months with Interferon therapy? Unable to provide response  
• Of these patients, how many have received no active treatment in the past 6 months? Unable to provide response  

Q5. Does your trust participate in any clinical trials for the treatment of myelofibrosis? If so, can you please provide the name of each trial along with the number of patients taking part.  No